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The History of TSE (Prion Diseases) Caring for a loved one with CJD Getting tested for the CJD Mutation
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Deana's purpose in
establishing this web site is to provide support to other families
afflicted with Familial CJD. Whether you have had a loved one die of
Familial CJD or are currently watching a loved one die with this illness,
Deana wants to provide you with the information and resources you may need
in order to deal with the realities of this horrible disease. This disease
can leave you feeling helpless and alone -- be assured that you are not
alone.
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Deana Simpson is a
registered nurse and has had first hand experience with Familial Creutzfeldt-Jakob
Disease (CJD). Deana's mother died of Familial CJD at the
age of 64. See 'Our Story' for more details surrounding her mother's
illness and subsequent death. 
Dr. Paul Brown
is a
graduate of Harvard College and the Johns Hopkins School of Medicine,
and obtained most of his training in internal medicine on the Osler
Service of the Johns Hopkins Hospital. He is a Board Certified Internist,
and a career neuroscientist in the Laboratory of Central Nervous System
Studies at the National Institutes of Health, where he holds the
position of Senior Research Scientist. He also serves as expert consultant to
several TSE advisory committees in Europe and the Americas. His
role in this web site will be to provide accurate and current information
regarding familial and other forms of TSE.